A new technique is helping people with post-infectious diseases like Long Covid and ME/CFS communicate their experiences more effectively. Researchers from Oxford University, including Dr Maaret Jokela-Pansini and Professor Beth Greenhoughhave introduced “body mapping” as a powerful tool for patients to express the physical, cognitive, and emotional impacts of their conditions visually.
The Challenge of “Invisible Illnesses” Like Long Covid
Post-infectious diseases often present a unique challenge:
- Patients report debilitating symptoms
- Routine medical checkups may show normal results
- Sufferers may not appear visibly ill
This disconnect can make it difficult for patients to convey the severity of their condition to others, including healthcare professionals, family, and friends as was the case with Oonagh Cousins, the British Olympic rower who had to give up her sport due to Long Covid as is an ambassador for Long Covid Support.
Body Mapping: A Visual Language
The body mapping technique involves:
- Creating a life-size outline of the patient’s body
- Using drawing, writing, or collage to answer questions about their experience
- Visualizing pain, emotions, and experiences on the body “map”
This method allows patients to tell their stories in a unique and powerful way, often revealing common themes such as feelings of isolation and being “left behind”.
Impact and Future Directions
While body mapping won’t cure these conditions, it offers several benefits
- Improved communication with family, friends, and healthcare providers
- Increased credibility for patients struggling with disbelief
- Potential for better understanding and management of symptoms
- Opportunities to explore regenerative therapies too
Researchers are now developing an online toolkit to make body mapping more accessible, especially for those unable to leave their homes due to illness.
